Key organisations providing care support are:
QUALITY HOME HEALTHCARE
http://www.clinovia.co.uk
|
Clinovia is Britain’s most experienced home healthcare provider. We support Strategic Health Authorities, Primary Care and NHS Hospital Trusts by providing high quality, tailored home healthcare services.
Our flexible partnership approach helps healthcare providers to meet their patient care targets and reduce waiting lists, |
 |
while ensuring patients continue to get the quality clinical care they need in the comfort and convenience of their own home.
Head Office
Scimitar Park, Roydon Road, Harlow, Essex CM19 5GU
Tel: 01279 456789
Fax: 01279 419900
Email: enquiries@clinovia.co.uk
Website: www.clinovia.co.uk
JULIA’S HOUSE
Dorset Children's Hospice
(Charity No 1067125)
 |
Julia’s House in Broadstone, Dorset's first Children’s Hospice, was officially opened on 30 March 2006 by Elaine Perks, the daughter of Julia Perks who had the original vision for the hospice. Life-limited and life-threatened children from all over Dorset, the majority of whom are not expected to live to adulthood, attend for day care and some overnight stays. |
The dedicated team of nurses and carers support the children and their families in their own homes giving a much needed break to parents who face the pressures of meeting the complex medical needs of their children, for weeks, months and often years.
Julia’s House will be most grateful for gift donations of any amount, but anyone donating £50 or more can have their name carved into one of the bricks.
Contact info:
Julia's House
214-D Lower Blandford Road
BROADSTONE BH18 8DX
Tel: 01202-640402
Fax: 01202-640403
E-mail: info@juliashouse.org
THE CHILDREN’S TRUST
 |
The Children’s Trust is a national charity working with children who have multiple disabilities and complex health needs. They are based at a 24 acre site in Tadworth, Surrey but their services are offered to children from across the UK.
The Trust offers a unique combination of skills and experience in meeting the complex needs of children with profound disabilities.
|
 |
Services comprise:
Short, medium and long term residential care and therapy;
Rehabilitation for children with an acquired brain injury;
Short breaks (either at our site in Tadworth or in the family home);
Hospice/ palliative care;
Ventilatory dependent care;
Education, care and therapy for children and young people with profound and multiple learning disabilities at St Margaret’s School.
|
Telephone: 01737 365 000
Fax: 01737 365 001
E-mail: enquiries@thechildrenstrust.org.uk
Post:
The Children’s Trust
Tadworth Court
Tadworth
Surrey
KT20 5RU
THE LIFETIME SERVICE
LIFETIME helps provide the quality of life for children whose lifespan is likely to be limited and who have complex health care needs and for their families. Servicing the Bath and Bristol area it comprises specialist paediatric nurses and child psychologists supported by hospital based consultants and senior nurse managers.
Once Lifetime is admitted to the team they work to reduce the stress in the lives of all the family members and to improve their psychological well being. They provide educational support to enable parents to feel more confident in caring for their child, they co-ordinate services and liaise with relevant agencies such as schools and social services. An additional aspect of their work is that they provide networking as this reduces a families feeling of isolation and despair.
Contact: Brenda Yorston
THE LIFETIME SERVICE
Child Health Department,
Bath NHS House
Newbridge Hill
BA1 3QE
Tel: 01225
Email: brenda.yorston@banes-pct.nhs.uk
Or lifetime@banes-pct.nhs.uk
CONTACT A FAMILY
Across the UK, a child is diagnosed with a severe disability every 25 minutes. Although some children need hospital care, 98% of disabled children live at home with a parent or other family member who may not have expected to be in this position but who has quickly had to become an expert.
When parents find out that their child is disabled they feel isolated and alone because usually they don't know anyone else facing the same problems. They want contact with another family who've been through a similar experience and they want information about their child's disability.
Contact a Family is the only UK-wide charity providing advice, information and support to the parents of all disabled children - no matter what their disability or health condition. They also enable parents to get in contact with other families, both on a local and national basis. Each year we reach at least 275,000 families.
They offer a range of services to support families including a freephone helpline and a number of offices, staff and volunteers around the UK. They also provide information to professionals and developmental advice to support groups. Most of their information materials can be found on this website, others will need to be ordered. They also work to influence services and have campaigns that aim to improve the quality of life for families with disabled children
Contact a Family, 209-211 City Road, London EC1V 1JN
Tel: 020 7608 8700 Fax: 020 7608 8701
Helpline 0808 808 3555 or Textphone 0808 808 3556 Freephone for parents and families (Mon-Fri, 10am-4pm & Mon, 5.30-7.30pm)
e-mail: info@cafamily.org.uk
Registered Charity Number 284912