- Ensuring our inter-active website is up-to-date.
- Instigating a “Find a Family” programme to help trace and support affected families, and to develop a database for communication and research.
- Developing a regional network of family support officers that incorporates a Helpline.
- Identifying and liaising with care organisations that provide weekend and holiday respite care for both parents and children.
- Drawing social and political attention to the social, emotional, and economic needs of this growing but much ignored minority group.
- Working with the NHS with a view to influencing nurse training




