Contact the Jennifer Trust for Spinal Muscular Atrophy:

Tel (Helpline): 0800 975 3100 

Tel: 0870 774 3651

Best time to telephone: normal office hours
Web: www.jtsma.org.uk



Congenital Central Hypoventilation Syndrome - Connecting CCHS Families Around the World.
http://www.cchsnetwork.org