Managing Children On LTV

Once a treatment programme has been established there will be a number of options, keeping the child in a Paediatric Intensive Care Unit (PICU) facility or adjacent ward, transferring a child to another hospital/care facility or working towards hospital discharge and transition to home care.

At all stages Breathe On UK is there to help families and carers with the provision of information on:

• Local authority grants
• Equipment that makes looking after an LTV child easier
• How to get free nappies
• How to claim for travel costs
• Community support
• How to involve siblings in care programmes
• Key requirements for caring for a child at home
• Special equipment suppliers
• Respite weekend breaks

The Breathe On UK team of advisors are either parents who have already found the answers to the myriad of questions families want to ask or family support managers who can assist with medical and general well being requirements.   Medical advice must always be sought from the hospital or family GP.

Breathe On UK is only a phone call or email away.  Click here to go to the Contacts Page.