Latest News & Events

  • “Empowering people to make positive change” Nicholas Endean - Swain & Co Solicitors

    A statement for Breathe On from Nicholas Endean of Swain & Co Solicitors.

    “We believe that everyone should have the opportunity to lead a fulfilling and rewarding life and the work that Breathe-On do ensures that this aspiration can be met to vulnerable children and adults who are in need of help and support.

    Sometimes however issues can arise and this is where we can help.

    Nicholas Endean, Solicitor and manager of the community care department: “When families entrust their loved ones to healthcare or social care professionals, we all hope that problems do not arise. Unfortunately and especially in today’s economic climate, disputes over funding, responsibility and provision of services are becoming more and more frequent.

    This is where we can help. Ensuring that someone’s rights are upheld and providing the services to meet that person’s needs is becoming a legal minefield. We have the expertise to provide clear and concise advice on what legal avenues and options are available.

    Legal Aid is available in certain circumstances to help fund what can be an difficult and complex case”

    Swain & Co Solicitors are specialists in community care law and one of only a few firms to hold the legal aid contract in the south.

    If you are in need of legal assistance then please contact Nicholas Endean on:
    02380 631111″

  • Come and join our forum…

    Are you frustrated with using Facebook and other social media platforms to get your point across?

    If so, why not sign up to use our friendly forum so that you can share your experiences with other people and families in similar situations to you.

    It is quick and free to register – click here to sign up!

  • Breathe On – Invasive Medical Device Study

    Is your child aged between 4—12 years?

    Have they had an invasive medical device for at least 3 months?

     Central line or portacath?
     Gastrostomy (PEG)?
     Tracheostomy?
     Dialysis catheter?

    If so, you may be able to help!!

    The University of Leicester is carrying out a study to understand what living with an  invasive medical device is like for children, and their families, and how the risk of device
    infection is managed.

    Click here for further details

    Charity Patron Prof SW Hawking CH, CBE, FRS with Bob Walter MP North Dorset

    Charity Patron Prof SW Hawking CH, CBE, FRS with Bob Walter MP North Dorset and Patrick Padgett “Goodworks”

  • “I Can Breathe” Narrated by “The Voice” – Stephen Fry

    Stephen Fry

    Click the link below to download the book as a PDF.

    I Can Breathe book a4

  • Latest PROMS report

    “Breathe-on UK” Patient reported outcome measures study (PROMS) of children on long term ventilation (LTV).
    August 2012.

    » Click here to download the report as a PDF

    » Click here to download the report poster as a PDF

  • Professor Stephen Hawking to deliver speech

    Our Patron, Professor Stephen Hawking will be delivering a speech at our event on Tuesday 30th April 2013.

  • Celebrating our 8th year…

    April saw the Charity reach our 8th anniversary, and we celebrated with a gathering of friends old and new, supporters and well-wishers.

    Drinks and canapes were the order of the day followed by an entertaining Fashion Show, and speeches from our Founder Victoria Townsend, and Chairmen – old & new!

  • Second edition of Information Packs

    We are delighted to say that our “Parents Pack” has been updated, and the second edition will soon be in print.
    At the launch of their first publications Breathe On UK were applauded in their efforts since launch in 2004 by both Anne Milton MP, then Shadow Health Minister and Dr Sheila Shribman, Clinical Services Director of the NHS.They both stated how they would like to help families with children on long term ventilation obtain support and help from all the agencies and recognised how important it was to ensure that children were given the best care and the most help in battling with multiple health problems and particularly those with a minority voice.