PLEASE NOTE THAT, TO ACCESS OUR SUPPORT, YOU WILL NEED TO REGISTER WITH BREATHE ON UK, .
WE ASK THIS TO HELP ENSURE THE PRIVACY OF OUR FAMILIES, AND HOPE YOU UNDERSTAND THAT THIS MUST BE OUR PRIORITY.
So, how can Breathe On UK help?
Breathe On UK provides emotional and practical advice, information and guidance, based on the personal experiences of parents, families, and carers. We do not seek to offer medical guidance, or to subsume the responsibilities of the NHS and its medical, clinical and nursing specialists. We do however keep a watching brief on hospital practices and levels of care, and on post-hospital treatment.
The Charity also seeks to act as a collective voice for the parents, families, and carers of LTV dependent young people. Our Founder is the parent of an LTV child, and has many years experience of dealing with the stresses, strains and sheer slog of trying to maintain a “normal” family life with an LTV or oxygen-dependant young person.
We know that sometimes a listening ear is all you need to make the day seem a little brighter.
WE ARE HERE TO LISTEN!
- Call us any weekday morning between 9am-1pm on 01258 820724
- Join the online chat-room, to talk with other parents (opening shortly)
WE ARE HERE TO HELP, WHEN WE CAN!
We are never able to offer medical advice, or opinion, but can offer a wealth of experience to assist with the practical matters that can seem so daunting.
- Local authority grants
- Equipment that makes looking after an LTV child easier
- How to get free nappies
- How to claim for travel costs
- Community support
- How to involve siblings in care programmes
- Key requirements for caring for a child at home
- Special equipment suppliers
We can’t guarantee to find the answers for you, but we will always try, and our experience ranges from grant sourcing, to discovering where to get free nappies!
PRACTICAL HELP FOR YOUR CHILD
- Breathe On UK can help with the purchase of an item which will make life easier or happier for your LTV or oxygen-therapy dependent young person (up to the age of 21), A recent example is the purchase of a laptop to allow one of our children to keep up with her schoolwork when too poorly to attend, but it might be something as simple as funding a musical mobile.
PRACTICAL HELP FOR THE FAMILY
- We may be able to cover the cost of a family ticket, plus the additional care costs for your LTV child in your absence, to allow you and your other children to take a day out together at Alton Towers or Thorpe Park (other locations considered on request)
- We are occasionally able to fund short breaks for the entire family (currently at Centre Parcs), subject to your LTV child being medically cleared and care support being in place. However, a very limited number of these holidays are available in any one year.
PRACTICAL HELP FOR YOU!
We understand how it feels to be utterly worn out, Sometimes, just a little time out can make a world of difference.
- Subject to fund availability, we can offer parents a night’s accommodation in a hotel, with breakfast and dinner included, and will cover the cost of any additional care required at home to enable your absence.
A NOTE ON OUR CRITERIA AND CONDITIONS
Families caring for a child, or young adult up to the age of 21, on long-term ventilation or oxygen therapy, and who are registered with Breathe On UK, may apply for one of our funded opportunities. We require all applications for funded support, such as Time-outs, Short Breaks or Equipment, are supported by a letter from the relevant Consultant, GP, Health Visitor or Social Worker, and we do spend some time talking with our families before any application is considered.
All funded opportunities are subject to fund availability. Eligibility is subject to appropriate medical clearances and care support being in place. Each application is considered by our Board of Trustees, and a decision is made against the fundraising monies available. The Trustees decision is final. While, in some cases, families might be considered suitable for more than one funded option, it is more likely that the decision will rest on an outcome and benefit which bests suits the whole family.
Short break holidays for the whole family, including the supported child or young adult, require the medical approval of the Consultant responsible for the case, and medical assessment may be required. Breathe On UK cannot be responsible if medical clearance cannot be given, nor if change to medical status means that a planned break cannot take place. Breathe On UK do not provide care workers – medically trained or otherwise. Families are, at all times, responsible for ensuring the necessary care support provision is in place.