How We Can Help

Family support officer independent patient advocate will on request

  • Attend care reviews and best-interest meetings
  • Liaise with statutory and voluntary bodies
  • Support with benefit advice
  • Hospital visit
  • Home visit


Breathe On UK is also:

  • Ensuring our inter-active website is up-to-date.
  • Identifying and liaising with care organisations which provide weekend and holiday respite care for both parents and children.
  • Drawing social and political attention to the social, emotional, and economic needs of this growing but much ignored minority group.
  • Working with the NHS with a view to influencing nurse training

The Founder & National Director of Operations of Breathe On has personal experience of what it is like to have a child who requires long-term ventilation

>> Click here to download our information card as a PDF